(NEW YORK) — When Nicole Santamorena was a baby she pulled her hair for comfort when she was distressed or sick. But that coping mechanism eventually escalated into pathological grooming behavior so serious that she was bald by middle school.
“I had to wear a hair piece and a bandana,” said Nicole.
Today, the 17-year-old from Putnam, N.Y., still fights the urge to pull out hair, but therapy, a good support group and even Internet friends with the same compulsive behavior have all helped.
Medical experts are baffled by these behaviors. But now they are giving more scrutiny to pathological groomers, those with dermatillomania [picking scabs], trichotillomania [pulling hair] or even simply nail biting.
“The problem is we don’t have data — it’s not something we collect because we always thought of these behaviors as benign,” said Dr. Nilay Shah, a neurologist and medical director of the Integrated Medicine of Mount Kisco, N.Y.
“It’s common enough to see 20 or 30 percent of all kids at some point along a spectrum that we call pathological, but other than that it’s a wild guess.”
Soon, all of these repetitive habits will be included in the American Psychiatric Association’s DSM-V or the latest Diagnostic and Statistical Manual of Mental Disorders under the broader category of obsessive compulsive disorder (OCD).
“That’s a great thing,” said Shah, who treats Nicole for other health issues.
“The beauty is that a categorization in the DSM-V gives it a whole new light,” he said. “And the research institutions can have a unified definition and approach that will lead to drug company and NIH funding.”
Doctors know that OCD is a spectrum of disorders. Compulsive hand washers and germaphobes exhibit repetitive behaviors as a kind of magical thinking to ward off something bad happening.
Pathological groomers like Nicole, on the other hand, derive stress relief and pleasure from their tics.
“There is a sensation I get before I pull,” Nicole said. “It’s like a pulsating scalp and if I don’t pull, it doesn’t go away. It’s kind of a compulsion.”
Studies suggest that the behavior is also genetic. Nicole’s mother picks her skin scabs and her father bites the hair from his knuckles.
“When you look at the brain wave activity, it does correspond with obsessive compulsive disorder,” said Shah. “We know consciously that it’s not right or logical or reasonable, yet cannot help doing it. And for a brief moment it feels better — there’s a release.”
Researchers speculate that on a microscopic level, the signals or neurotransmitters in the brain are involved and often use antidepressant medications to help treat these behaviors.
Copyright 2012 ABC News Radio