Bride Races Against Cystic Fibrosis to Get to the Altar - East Idaho News

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Bride Races Against Cystic Fibrosis to Get to the Altar

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GETTY H 053011 LungIllustration?  SQUARESPACE CACHEVERSION=1330094458379Stockbyte/Thinkstock(NEW YORK) — Doctors said Kirstie Mills Tancock may not make it to the alter without a new set of lungs.

The 21-year-old from Devon in the United Kingdom has cystic fibrosis, and just days before her dream wedding last year, her lungs filled with a life-threatening infection.

“I have spent every moment living like it was my last,” said Tancock, who, until her health spiraled downward, was a fit athlete and worked as a pole dance instructor.

“I take life as it comes,” she said.  “You never know what’s going to happen.  Just because you know your life will end doesn’t mean you have control.”

Television cameras followed Tancock for four months last year as she simultaneously planned her wedding and waited for a lung transplant.  Breathless Bride: Dying to Live will air on TLC on Feb. 29 at 10 p.m. EST.

In the documentary, Tancock was confined to a wheelchair and hooked up around the clock to an IV for strong pain medication and antibiotics.  Just days after her June 16 wedding, she was medevaced to a London hospital for a lifesaving double lung transplant.

“Kirstie is a complete fighter,” said her husband Stuart Tancock, 27, and a sports store manager, in the documentary.  “You can’t put her down.  She’ll fight for anything.”

From a young age, Kirstie Tancock knew she was living on borrowed time.  She was born with cystic fibrosis, an inherited chronic disease that affects the lungs and digestive system.  About 30,000 children and adults in the United States have the disease.

Close to 1,000 new cases are diagnosed each year in the U.S., and about one in three people with the disease will die waiting for a lung transplant.

A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening infections, according to the Cystic Fibrosis Foundation.  The disease also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

Only a half century ago, few children with CF lived to attend elementary school.  Today, medical advances have extended the average life span of someone with CF well into their 30s and 40s.

According to the CF Patient Registry, nearly 1,600 people with the disease have received lung transplants since 1991.  As many as 90 percent are alive one year after transplantation and half are still living after five years.

Copyright 2012 ABC News Radio

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